What's the next step?

So, we had another conference with the doctors today (If you're not in the mood to be depressed, do not continue reading.) They have decided that her condition, whatever it is, fits into the neurological problem called "epileptic encephalopathy". They had decided this quite a while ago but it still doesn't say much about what the problem actually is. Still just some really rare brain problem that nobody knows much about. But now, if you want, you can say that's what "the problem" is. All the tests they're getting back still say everything is normal. However, they are now telling us to start thinking about the possibility, or probability, that she's not going to live. Every time she has an "episode" her respiration levels drop which in turn make her saturation levels drop. So they have to keep her on oxygen. Not a problem, lots of babies go home on oxygen. The problem is though, that she has to be on enough medication to "kind of" make the seizure type part of her episodes less severe but in order to do that the medication knocks her out enough that she has a harder time breathing on her own and they don't think they can find a happy medium enough to get her down to a little nasal cannula so we can take her home. So they have now left us with the decision of when to take her off the oxygen, or how fast or slow to wean her onto a nasal cannula, or whatever. The part that doesn't make sense to me is that she was on MORE medication than this a few weeks ago when she WAS just on a nasal cannula and she was doing fine (we should have just taken her home then.) So now I don't know what to think. Is it better for me to look at this little fact and keep hoping that she will do fine on a nasal cannula again? Or is that false hope and I just need to give in and decide that she is going to die? Or is doing that just like completely giving up on her? And if so, is that the right thing to do? Who knows. Right now my brain is just so tired and completely spinning. I have no idea how to think or feel. All I know is that I absolutely CANNOT bare to watch my child die and then have to look at her tiny perfect body laying in a casket. Oh, and then there is the worry of, where would we even bury her?! I have no idea where Logan and I are going to end up as life goes on! If this is going to be the case, I almost wish it wouldn't. Oh, and apparently Logan and I will also be seeing a genetic counselor to find out if it's even a good idea for us to have other kids. Obviously I want other kids!(It seems dumb to have to say "well I've been pregnant twice, given birth once, and have no living children!) But right now I just want to be able to keep the one I've got! What am I even supposed to think of all of this?! I just want my baby to be okay.